Twenty years to diagnosis: One woman's endometriosis story

Imagine being told that the pain you were feeling was normal.

For Edmonton-based comedian, Brandi CK La Perle, this is a story she knows all too well. Since age 9,Brandi suffered from swellingeyes and throat, rapid weight loss and excruciatingmenstrualpain, but it wasn't until 2013 22 years after the her symptomsstarted that she wasproperlydiagnosed.

Since then, Brandi has devoted herself to spreading awareness about the disease and rectifying the misinformation floating online.

Affecting an estimated 176 million people worldwide and about 500,000 Canadian women and, in rare cases, men endometriosis creates lesions throughout the body that can scar any organ and cause significant bleeding. The symptoms range from fatigue and infertility, to painful sex and debilitating pain in the bowel and bladder, especially during menstruation.

While celebrities like Lena Dunham and Padma Lakshmi have spoken up about their personal experiences with the disease, many have never heard of it.Brandi opens up about her long journey todiagnosis, living with endometriosis and founding Alberta's WorldWide Endomarch Team.

For more information about endometriosis please visit Endometriosis Network Canadaand Endopaedia.