Beyond the Pale

Like any new mother, Emily is thrilled when her first child, a daughter, is born. The baby, Sadie, is healthy and stunningly beautiful, with snow white hair and fair skin. Even the doctors and nurses can't help a second look at this magical child. But soon a darker current begins to emerge something is amiss. After three months of testing, Sadie is diagnosed with albinism, a rare genetic condition. With Sadie at her side, Emily researches the cultural beliefs surrounding albinism and finds a curious history of outlandish tales of magic, and of good and evil reaching back through time, along with present-day atrocities. In some parts of the world, people with albinism are stalked; their condition is seen to bring luck and health as well as danger and death. Investigating the different reactions, in different cultures, to those with albinism, Emily begins to see her child as a connection between worlds.

• Emily Urquhart: How I wrote Beyond the Pale

Part memoir, part cultural critique and part genetic travelogue, Beyond the Pale is a brave, intimate investigation into the secret histories that each of us carries in our genes. (FromHarperCollins Canada)

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From the book

Author interviews

The Next Chapter15:42Emily Urquhart on Beyond the Pale

The folklorist and author talks about how her daughter's albinism set her on a quest to understand the condition. The result is her book, Beyond the Pale: Folklore, Family and the Mystery of Our Hidden Genes.