Home-share caregivers burning out from lack of gov't support during pandemic, association says

As she makes her way to the couch exhaustedfrom the day, caregiver burnout in the midst of COVID-19 is the simplest way Lisa Garner can express what she's been feeling since February.

She provides support in her own homefor Paul, a 62-year-old man livingwithdevelopmental disabilities.

(Paul's legal guardians have asked we notuse his last name.)

As a result of the pandemic, the home-share caregiver says herrole has becomea 24-hours-a-day, seven-days-a-week job. She says that's because day programming outside the home for clients like Paul was cancelled for a period of time and while some regions have reinstated it, it isn'tfor everyone due to COVID-19 safety requirements and physical distancing.

Garner is one of thousands of people across B.C.employed to live with and provide care for adults living with developmental disabilities. But Garner saysshe isn't paid for the additional activities and hours she has to work, now that Paul is home 24/7.

"My client would leave from 8:30 in the morning to threein the afternoon. I'm now having to create a day program in those hours. I can't do anything else," Garner said.

And she says theextra work isn't in her contract, so she isn't being paid for it.Paul pays forhis room and board, but she says additional costs like cleaning and activities are draining her pocket.

"He has meals with us.I've hadPaul longer than I've had my son," she said.

Selena Martin, the president of the B.C. Home Share Providers Association, saysit's the same story for many of the 600 caregiversher association represents.

Martin says the average home-share caregiver makes $1,500 to 1,700 a month and isprovided additional funds to pay for their client's room and board.

She says it's not enough money to cover the additional work brought on bythe longer hours and care related to the pandemic.

"We need to have respite homes and emergency beds available. We can't find workers," Martin said.

She saysmany reliefworkerswho would typically sub in to give home-share caregivers a break are not doing the job anymore because of COVID.

'I call him my brother'

As well as heading up the association, Martin is also a home-share caregiver for Sean Laughrenwho has lived with her for 13 years.

"I call him my brother from another mother. Butwe just need a break," Martin said.

She says some members of the association did receive emergency pandemic funding from the provincial government by way of Community Living B.C., the Crown corporation that oversees home-share providers' work.

For Garner, that meant an additional $1,200 a month from April to August to pay for extra costs incurred by 24-hour care, but the funding has stopped.

Martin says it needs to continue.

She says she hasreached out to the province on behalf of the association and has been told concerns around additional payfor round-the-clock work,the need for reliefworkers and targeted mental health counselling for workers and clients will be addressedbut she hasyet to hear solutions.

Community Living B.C. referred all questions about fundingto theMinistry of Finance, which saidthe government has provided$15 million in extra support funding for home-share caregivers through Community Living B.C. The ministrysays government is working to identify ongoing support needs for families and care providers.

Martin says the promises arehardly reassuring. She says caregivers' calls for help have been ignored for months.

"The people we provide support to are invisible, because they're inside our homes.They're not out in the public."