More parents of children with 'rare' strep A complications want answers

After reading about 11-year-oldNupurMate's battle with septic shock from a serious group A strep infection, two different parents are sharing similar stories of their child'sbrush with death and are demanding answers to why doctors assume flu at first sight.

It wasn't until four-year-old Emanuel Cherian's body was in septic shock thatstreptococcus A bacteria was discovered in his blood. His father,Boney Cherian, said the boy'svomiting and fever weren'tgetting better with Tylenol and rest the advice they were first offered by doctors at their local hospital. "We went straight to SickKids," Cherian said, adding that they arrivedjust before his son's heart stopped.

"Nobody expected him to survive the first night," Cherian said.

Heavy doses of antibiotic treatment cleared Emanuel's sepsis before his organs failed and he's now home recovering well. His parents, however, are still struggling with how the infection went unnoticed before it was almosttoo late. Boney Cheriansaidhe will file a complaint with the ombudsman oftheir local hospital.

Most people, and doctors, don't expectthe common group A strep bacteria to develop into anything worse than strep throat. But unfortunately for EmanuelCherian, Nupur Mate and ArminJalalvandi, aged two-and-a-half,they make up the small population of cases that are anomalies.

• Mississauga girl loses 2 limbs after infection doctors thought was influenza

AlthoughMohammad Jalalvandi's son didn't experience cardiac arrest, Armin's soreness in his hip and fever were mistaken for influenza symptoms. Once at SickKidsdays later,doctors told him his son was within seconds of notsurviving.

"So they rushed for surgery on his hip and drain the infection and the transfusions because the level of infection was so high in his blood," Jalalvandi said. Aswith theother cases, it wasn't until the septic shock set in that strep A was found in his blood.

"I just think if they prescribed antibiotics from the beginning, it could have prevented this thing," Jalalvandi said.

Serious group A strep is hard to diagnose

A serious group A strep infection is one of the hardest infections to diagnose, according to infectious disease expert Dr. AllisonMcGeer. Evenblood workdone at the first hospital visit can miss the septic shock that might be brewing.

"Early on in your group A strep, you may well not have the bacteria in your bloodstream or not in sufficient concentration in your bloodstream to be detectable," McGeersaid.

I am equally sure that anyphysicianwho treated this child is also upset.- Dr. Allison McGeer, infectious disease consultant at Mount Sinai Hospital

To Jalalvandi's question of whether early prescriptions for antibiotics could have stopped his son's infection from advancing so quickly, McGeer saidthat policy would cause more harm than good.

"If we treat them all with antibiotics, we expose them to the adverse affects of them," which she saidare uncommon. However, over-prescribing is too risky because the majority of fever cases are not caused by bacterial infection, she said.

Misdiagnosis leads to double amputation for little girl

7 years ago

Duration 1:51

Hospital visit became the first of two times her parents were told their daughter had influenza and could recover at home

"Of course people are upset and angry when things go wrong and I am equally sure that anyphysicianwho treated this child is also upset," McGeer said.

"We have very well-trained physicians and a great health-care system, for all its failings. But that does sometimes create the impression that doctors are always right and that's not possibleno matterwhat resources you have."