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Posted: 2018-01-16T10:00:34Z | Updated: 2018-01-16T16:04:31Z Why The World Ignores Diseases Of Poverty | HuffPost

Why The World Ignores Diseases Of Poverty

Over 1 billion of the world's poorest people have at least one of these illnesses.
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More than 1 billion people worldwide are infected with diseases of poverty . These conditions disproportionately afflict the world’s poorest, either in the developing world, or in developed countries with extreme inequality.

Though well-known conditions such as HIV/AIDS and malaria are considered diseases of poverty, many of the other illnesses that primarily strike the world’s poorest are lesser-known and frequently misunderstood. The World Health Organization has designated about 20 of these conditions as “neglected tropical diseases .” This diverse array of conditions such as leprosy , dengue, Chagas , and elephantiasis , to name a few don’t attract the global media attention or funding that certain wide-ranging tropical diseases, such as malaria, have garnered in recent years.

Neglected diseases cost developing economies billions of dollars annually and lock sufferers into a cycle of poverty that is nearly impossible to escape. 

So why does the rest of the world overlook or ignore most diseases of poverty? 

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Amos Kiptui, 27, sits in a cave in a remote part of Kenya where an outbreak of cutaneous leishmaniasis has plagued the local community. He is among those afflicted with the flesh-eating disease.
Zoe Flood

Many Of Them Aren’t Deadly

HIV and malaria can be fatal, but many diseases of poverty aren’t. In fact, the neglected diseases that kill  Chagas, sleeping sickness , and rabies, for example account for 170,000 deaths globally, a relatively small number. More often, diseases of poverty cause extreme pain and can even disfigure or disable victims for life.

Because they’re not big killers, these diseases don’t attract a lot of funding that would go toward researching new drugs or providing hard-hit areas with greater support, according to Dr. W. Evan Secor, a microbiologist in the Division of Parasitic Diseases and Malaria at the Centers for Disease Control and Prevention . It’s tough to get people to pay attention to diseases that aren’t already well-funded, he added.

“People either pay attention to diseases that will kill many, or diseases that are funded heavily,” he said. 

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The tiny town of Salambongo, Congo, where many people are infected with neglected tropical diseases.
Neil Brandvold/DNDi

They Affect The Most Marginalized Communities

The neglected tropical diseases can be found in 149 countries across the world, predominantly sickening extremely poor people who live in developing or remote areas.

“Poor people living in rural areas in developing countries tend not to have a lot of advocates,” Dr. Secor said. “They also don’t have a very developed health infrastructure around them to deal with these cases, so their access to medicine is often limited.” 

Those affected might live far away from health services. In rural Kenya , for example, miles of rugged wilderness separate health workers from communities suffering with cutaneous leishmaniasis, a flesh-eating parasitic disease. Victims must walk hours to an outreach clinic, passing through areas where leopards hunt for fresh meat.

In the absence of health education and outreach programs, sufferers can live for years without proper diagnosis and treatment. If sufferers do have access to health care, the services available are often too weak and under-resourced to deal with the health burden these diseases present.

Neglected diseases can also create a public health challenge, since many of those affected may also suffer from other diseases, such as malaria and HIV. Expanded health services can go some way to treating other health problems that may be prevalent in a community.

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All the items spread out on this table are required to treat a single patient for the advanced form of sleeping sickness. This complex treatment is effective yet impractical, given that most patients live in rural Congo, far from hospitals and health workers.
HuffPost

Treatments Exist But Need Improvement

Neglected tropical diseases are often either water-borne or spread by mosquitoes and other vectors. Improved sanitation and hygiene can help control some of these diseases. In other cases, mosquito nets or water filtration devices can protect people from exposure to disease.

Some illnesses require health workers to distribute drugs in affected communities. These drugs can be useful in controlling the spread of diseases among members of a community, or saving sufferers from some of the worst effects of a particular illness but just because treatments exist doesn’t mean the problem is solved. Often, adherence is a challenge in areas where patients need to routinely visit clinics for a fresh supply of medicine. Plus, not all available drugs work consistently, and some can cause severe side-effects.

Advocates say better drugs are sorely needed for the neglected tropical diseases. But with little global focus on these illnesses, there is often a lack of funding to improve the efficiency of treatments.

Despite these challenges, a handful of the neglected diseases have been eliminated in specific countries.

Over the past five years, river blindness a parasitic disease that affects the eyesight has been eliminated in four Latin American countries. This success was part of an ongoing global effort involving the mass distribution of drugs to affected communities. But the river blindness is still a threat to millions of people in more than 20 nations, most of them in Africa. 

At the same time, there’s a similar initiative to wipe out the disfiguring parasitic disease elephantiasis (known in the medical community as lymphatic filariasis). Ten countries around the world have succeeded in eliminating the disease as a public health problem, according to the WHO. But 856 million people in 54 nations are still at risk.  

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A woman with severe elephantiasis, a disease that -- if left untreated -- can cause irreversible swelling of the limbs.
HuffPost

Sufferers Face Intense Social Isolation And Stigma

Many people who are disfigured or disabled as a result of a neglected disease live in communities that may not acknowledge or understand the disease. Sufferers might be socially marginalized and may struggle to work or maintain relationships especially when the disease causes disability or disfigurement.

In rural areas, rumors and myths abound about the causes of certain diseases in some cases, people are believed to have been cursed and can be ostracized by their families or communities. 

“You can call these diseases neglected, but they are also unrecognized — both by the international community and by those suffering from them,” Dr. Secor said.

The parasites that cause cutaneous leishmaniasis, for example, can gnaw away at the skin, causing deep lesions, itching and facial disfigurement . Elephantiasis, which can cause limbs to massively swell and skin to thicken and fold, is especially terrible for young women with dreams of marrying and having a family of their own. 

Neglected diseases can also prevent people from working , kneecapping their ability to make a living.

Raising awareness of these diseases can go a long way toward ensuring that communities accept and support patients in need.

This article is part of HuffPost’s Project Zero  campaign, a yearlong series on neglected tropical diseases and efforts to fight them. The series is supported, in part, by funding from the Bill & Melinda Gates Foundation. All content is editorially independent, with no influence or input from the foundation.

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Before You Go

Neglected Tropical Diseases
Lymphatic Filariasis(01 of18)
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Lymphatic filariasis, more commonly known as elephantiasis, is a leading cause of disability worldwide , according to the U.S. Centers for Disease Control and Prevention. It affects over 120 million people globally and can cause severe swelling of body parts, including the legs and scrotum. While people are usually infected in childhood, the painful, disfiguring symptoms of the disease only show up later in life . (credit:Drugs for Neglected Diseases initiative)
Onchocerciasis(02 of18)
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Onchocerciasis, commonly known as river blindness, is an eye and skin disease that can cause severe itching and visual impairment including blindness. Around 18 million people are infected . Of those, over 6.5 million suffer from severe itching, and 270,000 are blind. The disease is caused by a parasitic worm, transmitted through bites from infected blackflies. The worm can live for up to 14 years in the human body, and each adult female worm can be more than 1.5 feet long. (credit:ISSOUF SANOGO/AFP/Getty Images)
Chagas(03 of18)
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Chagas disease is a potentially life-threatening illness . In the first months after infection, symptoms are mild, including skin lesions and fever. But in its second, chronic phase, up to 1 in 3 patients develop cardiac disorders, which can lead to heart failure and sudden death. The disease is transmitted to humans by kissing bugs, which live in the walls or roof cracks of poorly constructed homes in rural areas, according to the World Health Organization. Of the estimated 6 million to 7 million people affected worldwide, most live in Latin America, but the disease has also spread to the United States. Around 300,000 people in the U.S. have Chagas disease, according to the Dallas Morning News . (credit:Nature Picture Library/Getty Images)
Dengue(04 of18)
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Dengue is a flu-like illness that can sometimes be lethal . In 2015, more than 2 million cases of dengue were reported in the Americas. In some Asian and Latin American countries, severe dengue is a leading cause of serious illness and death among children. Dengue is spread by the Aedes aegypti mosquitoes, the same type of insect that transmits Zika. To reduce the risk of bites, WHO recommends covering water containers, using insecticide, having window screens and wearing long sleeves. (credit:Fachrul Reza/NurPhoto/Getty Images)
Human African Trypanosomiasis(05 of18)
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Human African trypanosomiasis, commonly known as sleeping sickness , is a chronic infection that affects the central nervous system. People can be infected for years without signs, but in the second stage, patients can suffer behavior changes, hallucinations and even slip into a coma and die . Many people affected live in remote, rural areas that dont have easy access to quality health services. This makes diagnosis and treatment more difficult. WHO has identified sleeping sickness as a disease that could be eliminated worldwide by 2020 if the right resources are dedicated to it. (credit:MARIZILDA CRUPPE / DNDi)
Leishmaniasis(06 of18)
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There are several forms of leishmaniasis , including visceral, which can be fatal, with symptoms including fever and weight loss; and cutaneous, the most common form, which causes skin lesions, leaving lifelong scars and disability. The disease, spread by sandflies, affects some of the poorest people on earth, according to WHO, and is associated with malnutrition and poor housing. Around 1 million new cases occur annually, causing 20,000 to 30,000 deaths. Leishmaniasis is climate-sensitive, affected by changes in rainfall, temperature and humidity which means it could be exacerbated by global warming. (credit:Corbis Documentary/Getty Images)
Trachoma(07 of18)
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Trachoma is an eye disease, which if untreated, can cause irreversible blindness . It causes visual impairment or blindness in 1.9 million people, per WHO. The disease is present in poor, rural areas of 42 countries in Africa, Latin America, Asia and the Middle East but Africa is the most affected. (credit:STR via Getty Images)
Rabies(08 of18)
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Rabies is almost always fatal once symptoms show up. Initial symptoms are fever and tingling around the wound. As the virus spreads, people with furious rabies become hyperactive and die by cardiac arrest; people with paralytic rabies become paralyzed, fall into a coma and die. Transmitted by pet dogs, rabies causes tens of thousands of deaths every year. The disease is present on all continents except Antarctica but more than 95 percent of human deaths due to it occur in Asia and Africa. It is a neglected disease primarily affecting poor populations, where vaccines are not readily available. (credit:NOAH SEELAM/AFP/Getty Images)
Leprosy(09 of18)
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Leprosy is a chronic disease, which when untreated can cause permanent damage to the skin , nerves, limbs and eyes. There were 176,176 cases at the end of 2015, according to WHO. While the stigma associated with the disease means people are less likely to seek treatment, leprosy is curable, and treatment early on can avoid disability. Leprosy was eliminated as a public health problem in 2000 meaning there is now less than one case for every 10,000 people worldwide. (credit:Chandan Khanna/AFP/Getty Images)
Schistosomiasis(10 of18)
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Schistosomiasis is a chronic disease that causes gradual damage to internal organs. Symptoms include blood in urine , and in severe cases, kidney or liver failure, and even bladder cancer. Around 20,000 people die from it each year. Transmitted by parasites in infested water, the disease largely affects poor, rural communities in Africa that lack access to safe drinking water and sanitation. [People] get it as kids bathing in water, Sandrine Martin, a staff member for the nonprofit Malaria Consortium in Mozambique, told HuffPost. But the symptoms, like blood in the urine, only develop later and then people tend to hide it because its in the genital area. (credit:Malaria Consortium)
Chikungunya(11 of18)
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Chikungunya is a disease that causes fever and severe joint pain , according to WHO. While it is rarely fatal, it can be debilitating. Since 2004, it has infected more than 2 million people in Asia and Africa. There is no cure for the disease, which is transmitted to humans by infected mosquitoes. The name comes from a word in the Kimakonde language , spoken in some areas of Mozambique and Tanzania, that means to become contorted a nod to the hunched-over position of people who are affected with joint pain. (credit:Universal Images Group/Getty Images)
Echinoccosis(12 of18)
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Echinoccosis is a parasitic disease that leads to cysts in the liver and lungs. While it can be life-threatening if untreated, even people who receive treatment often have a reduced quality of life, according to WHO. Found in every continent except Antarctica, the disease is acquired by consuming food or water contaminated with tapeworm eggs, or through direct contact with animals who carry it, such as domestic dogs or sheep. (credit:Smith Collection/Gado/Getty Images)
Foodborne Trematodiases(13 of18)
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Foodborne trematodiases can cause severe liver and lung disease , and on rare occasions death. Most prevalent in East Asia and South America, the disease is caused by worms that people get by eating raw fish, shellfish or vegetables that have been infected with larvae. While early, light infections can be asymptomatic, chronic infections are severe.More than 56 million people were infected with foodborne trematodes, and over 7,000 people died in 2005, the year of WHOs most recent global estimate. (credit:Alexandre Tremblot de La Croix via Getty Images)
Buruli Ulcer(14 of18)
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Buruli ulcer is a skin infection caused by bacteria that often starts as a painless swelling, but without treatment, it can lead to permanent disfigurement and disability. In 2014, 2,200 new cases were reported, with most patients under age 15. The exact mode of transmission is still unknown. The majority of cases, if detected early enough, can be cured with antibiotics. (credit:ISSOUF SANOGO/AFP/Getty Images)
Yaws(15 of18)
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Yaws is a chronic, disfiguring childhood infectious disease . Affecting skin, bone and cartilage, the symptoms show up weeks to months after infection and include yellow lesions and bone swelling. More than 250,000 cases of yaws were reported from 2010 to 2013, WHO told HuffPost. A lack of clean water and soap for bathing contributes to its spread. Only 13 countries are known to still have cases of yaws, including Ghana, Papua New Guinea and Solomon Islands . (credit:BIOPHOTO ASSOCIATES via Getty Images)
Soil-Transmitted Helminth(16 of18)
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Soil-transmitted helminth infections are among the most common infections worldwide and affect the poorest communities. People are infected by worms transmitted by human feces contaminating soil in areas with poor sanitation. People with light infections usually have no symptoms. Heavier infections can cause diarrhea, abdominal pain, general weakness and impaired cognitive development. Depending on the number of worms, it can lead to death. Up to 2 billion people are infected worldwide, according to WHO. But because infections can be light, not all patients suffer, WHOs Ashok Moo told HuffPost. (credit:Malaria Consortium)
Taeniasis(17 of18)
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Taeniasis is an intestinal infection caused by tapeworms , which mostly causes mild symptoms, such as abdominal pain, nausea, diarrhea or constipation. But if larvae infect the brain, causing neurocysticercosis, the disease can cause epileptic seizures and can be fatal. People get it by eating raw or undercooked infected pork. The ingested tapeworm eggs develop into larvae and migrate through the body. Taeniasis is underreported worldwide because it is hard to diagnose in areas with little access to health services, according to the CDC. (credit:Science Source/Getty Images)
Guinea Worm(18 of18)
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Guinea worm is a crippling disease that it is close to being eradicated. There were only 22 human cases reported in 2015, according to WHO down from around 3.5 million cases in 21 countries in the mid-1980s. The disease is usually transmitted when people with limited access to quality drinking water swallow stagnant water contaminated with parasites. About a year after infection, a painful blister forms most of the time on the lower leg and one or more worms emerge, along with a burning sensation. It is rarely fatal, but can debilitate infected people for weeks. The Carter Center, founded by former President Jimmy Carter and his wife, has been instrumental in efforts to eradicate the disease. (credit:PETER MARTELL/AFP/Getty Images)